Resources

New Tool: Clinical Trial Tool

 

Other Resources:

We’ve been tracking recent articles, reports and statistics relevant to caregiving. We hope you find these useful.

From AARP – click for a list of RESOURCES CAREGIVERS SHOULD KNOW ABOUT

  • Here’s a great article by elder lawyers Lamson & Cutner. “Six major risks arising from the growing crises in dementia care.” It is especially relevant to New York residents who need to learn more about Medicaid Community Care vs. Medicaid Nursing Home care.
  • The National Alzheimer’s Association has just released the 2017 Alzheimer’s Disease Facts and Figures which includes a special report on the next frontier of Alzheimer’s research.
  • To access the one page NYS Statistics Fact Sheet
  • 2016 Centers for Disease Control 2016 Alzheimer’s At a Glance
  • If someone in my family has had #Alzheimers, will I have it, too? Understanding Alzheimer’s Genes: Know Your Family History
  • An article in the March 9th 2016 New York Times reports that a 2013 survey of nearly 500 caregivers by the Manhattan borough president’s office and the New York City chapter of the Alzheimer’s Association found a “’desperate’ need for services like home care and respite programs to relieve those giving unpaid care”. PSS is proud to be at the forefront of those serving this growing need, offering support to NYC’s caregivers for over a decade.
  • The first ever AgingCare.com State of Caregiving report uses the results of an online survey of more than 3,300 family caregivers to dive deep into the demographics, financial circumstances, living situations and support systems used by people caring for an aging loved one. This analysis offers unprecedented information about this vitally important group of men and women. “As Americans’ average life expectancy creeps ever upward, the need for family members to step in and take care of their aging loved ones will only increase. Currently, 36 percent of U.S. adults provide some kind of caregiving assistance for an older relative, according to the Pew Research Center.” AgingCare.com’s State of Caregiving 2015 report supports PSS’ position that one of the most important services we can provide is support to those who care for an elderly adult. Our Circle of Care has grown and continue to grow to fill these vital needs.
  • AARP’s “Valuing the Invaluable: 2015 Update” and The National Alliance for Caregiving/AARP’s 2015 Caregiving in the U.S. offer a wealth of information on caregiving nationwide.
  • The NYC Department for the Aging’s website is a vital resource for New York City caregivers.
  • The Family Caregivers Alliance Through its National Center on Caregiving, FCA offers information on current social, public policy, and caregiving issues and provides assistance in the development of public and private programs for caregivers, in both English and Spanish. Check out their Fact Sheets, especially their new Caregiving 101: On Being a Caregivers.
  • E-book from AgingCare.com Family Caring for Family — Navigating the landscape of caring for your elderly loved one; and thriving along the way.
  • SharetheCaregiving’s blog Share the Care provides resources for caregivers that will help prevent burnout, stress, isolation, depression and economic hardship.
  • A Place for Mom’s Blog is a great source of information on caregiving, Medicare, and dementia, among other issues.
  • Together in This covers general caregiver topics and emphasizes solutions for Alzheimer’s disease.
  • The Alzheimer’s Reading Room website provides you with materials to read and an online community to talk with.
  • Integrity Senior Services provide in-home mental health counseling to older adults and caregivers throughout the 5 boroughs. Visit their website to conduct a referral.

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