DFTA 2017 Survey of Informal Caregivers in NYC
This study is the first of its kind to examine the extent to which unpaid caregivers’ needs are met in NYC and to identify areas for further improvement. The study was created to provide actionable and policy-relevant data on the extent to which unpaid caregivers in New York City obtain the services they need and the barriers they may face in obtaining those services. The study was designed by DFTA and the Mayor’s Office for Economic Opportunity (NYC Opportunity) with input from the Administration for Children’s Services (ACS), the Mayor’s Office for People with Disabilities (MOPD), and community stakeholders including AARP. Conducted by NYC Opportunity in partnership with Westat, a research and statistical analytics firm, the study includes separate surveys for three groups of unpaid caregivers and providers of services to these caregivers. The three groups are adults caring for family member(s) aged 60 or over, including adults with Alzheimer’s disease or other dementia; Grandparents or other older relatives who are the primary caregivers of children under 18; and Adults caring for individuals with disabilities between the ages of 18 and 59.
“There are an estimated 900,000 to 1.3 million unpaid caregivers in New York City. While the three types of caregivers surveyed may not be representative of this entire population, the findings reveal that of all caregivers who completed the survey, most are women and many are seniors. A majority provide at least 30 hours of care per week, with many spending 40 or more hours a week providing care. Many have jobs, and it is not uncommon for these caregivers to encounter problems at work, change to part-time work, or quit their job because of their caregiving responsibilities. Many struggle financially, either barely managing to get by or not able to make ends meet. Caregivers acknowledge needing services like respite care and legal help, but sometimes they do not know that such services are available.”
The study is a wealth of information for anyone serving New York City’s caregivers. Please click here to read the entire study.